It has always been hard to get the right foods into my boy. I'm sure
that's familiar to many of you. In my son's case, he has a dreadful phobia of
trying new foods. It terrifies him, utterly, so I have never really
forced the issue. Instead, I've regularly talked to him about nutrition and worked with him to make sure he is getting just enough of the food groups.
Over the years he has occasionally said he is willing
to try something new, and I usually try to come up with something
similar to foods he already enjoys. Sometimes he will manage to try
them, and enjoy them (or hate them). And sometimes he completely freaks
out and can't cope. Sometimes this has upset me because I have invested
so much time and energy into cooking things "just right" for him. It's
hard not to get emotionally involved, but I try not to add that pressure
to him of course.
Obviously I have hoped he will eventually
get past this issue, but as it's a phobic reaction, I also see that it
could be a lifelong problem.
The
whole idea of "if he's hungry he'll eat" doesn't apply.
My son truly would starve to death first. He has gone on school camps and not eaten
for a full three days, if food wasn't right for him. (I'm sure you can imagine,
he is a complete wreck when he comes home). There's a world of
difference between fussy and phobic. Phobic isn't rational. Reasonable arguments about why tasting something new is a
good idea, don't really break down phobias. A person with a phobia can even accept that they are being irrational, but that doesn't diminish their fear. (I
should say too, those camps I mentioned above, in one instance I had
actually pre-cooked the meals at home and taken them out to the camp
cooking staff, but they didn't present it right, so he had trouble
trusting that it was really my cooking. So he
wouldn't touch it. The very idea that it might not be trustworthy food
was enough to completely freak him out. Suffice it to say I stopped
making him go to camps, as they were obviously not a positive or
worthwhile experience for him at all.)
He's 15 now, and the other day as
he was helping me with groceries, he said, "I think maybe I will try
new foods this year Mum. At my age, I really should give it a go." So we
went through the freezers at the supermarket and picked out a bunch of
Healthy Choice frozen meals, all entirely different to pretty much
anything he has ever liked.
My theory was
1. He was willing
2. I don't
have to cook them so there's less emotional involvement on my part.
3.
He was willing.
4. A lot of these meals are softer so he might enjoy
them more.
5. He was willing. :)
Here they all are lined up in the freezer. Some of
these (the spicier ones) are for me, but who knows? In my dreams I hope
he will try those ones as well.
Fingers crossed!
Showing posts with label Sensory Integration Dysfunction. Show all posts
Showing posts with label Sensory Integration Dysfunction. Show all posts
Stimming - socially inappropriate?
If stimming is socially inappropriate, who gets the privilege of making that decision? And what about people who stare or laugh at stimming? Or worse, what about people who find stimming somehow discomforting, and consequently try to control the innocuous behaviour of others (ie: suppress stimming behaviours), in order to restore their own comfort?
When my child was 6, an "expert" told me I needed to pin his arms to his sides to stop him from hand-flapping. That was when I first realised so-called "experts" often have no idea what the hell they are talking about, and are also often just imposing their opinions on others.
Don't accept "expert" opinion as gospel, people! If it doesn't feel right, don't do it!
Click the links below to further your insight into stimming and social "appropriateness".
When my child was 6, an "expert" told me I needed to pin his arms to his sides to stop him from hand-flapping. That was when I first realised so-called "experts" often have no idea what the hell they are talking about, and are also often just imposing their opinions on others.
Don't accept "expert" opinion as gospel, people! If it doesn't feel right, don't do it!
Click the links below to further your insight into stimming and social "appropriateness".
Socially appropriate.------------------------------------------
"This innocuous phrase has turned obnoxious for me. Here’s an example of why: I’m reading a book about teaching social skills to children with Asperger’s and I come across a sentence stating that children should be allowed to time to engage in stress-reducing activities, including “self-stimulation in socially appropriate forms.”"
About Stimming------------------------------------------
"Looking normal worked well for me for a few years, and then it made me miserable. I find it ironic that when my teachers and parents told me to stop stimming, their goal was the same as when they taught me social skills or took me to occupational therapy: to help me live in the world with the minimum of suffering. But I suffered more when I couldn’t stim, and I came back to it like it was a wonderful hobby I had forgotten about."
An interview with Emma about Stimming------------------------------------------
A: Do you like the word “stimming” ?
E: No.
A: Is there another word you’d prefer?
E: Yes, but words are not as meaningful to me as they are to those who talk all the time.
A: If you could choose any word other than stimming, what would it be?
E: Self-care
thAut Toons
Here's another batch of the latest thAut Toons. Check out the new Pinterest page as well.
Too often, people see autism as a tragedy.
"I'm so sorry you're autistic."
"I'm not!"
Sometimes autistic people find it hard to connect with others - but it's not always the autistic person who has a deficit. This one is possibly a little confronting for neurotypicals, but that doesn't make it less correct.
"In some ways, my autism makes me so smart that the rest of the world has trouble keeping up with my brain."
Again, in the theme of people seeing autism as a tragedy...
"Are people with autism allowed to be that happy?"
"No!"
"Maybe not, but autistic people are!"
Sensory issues can be a major barrier to communication.
"I'm sorry, but the soap you used today is hurting my nose and my eyes.
I can't hear anything you are saying."
Just because someone interacts differently, doesn't mean they need to be cured, doesn't mean that their life isn't worthwhile exactly as it is, doesn't mean they can't add value to your life.
"I don't talk. At all. But my life is worth living and I am worth getting to know."
The quiet moments are very valuable. Think outside the box a little. Why not choose a friend who doesn't talk?
"Conversation is okay. But friendship is better."
It's not all roses and rainbows.
"Sometimes it's cool to be different.
And sometimes it just makes me sad and tired."
People often equate silence with intellectual impairment.
"He doesn't talk. I wonder if there's anything happening in his head."
Artist: Landon Bryce
Images are sourced from:
thAutcast: Aspergers and Autism Community
Facebook: https://www.facebook.com/thautcast
Blogazine: http://www.thautcast.com/
Too often, people see autism as a tragedy.
"I'm so sorry you're autistic."
"I'm not!"
Sometimes autistic people find it hard to connect with others - but it's not always the autistic person who has a deficit. This one is possibly a little confronting for neurotypicals, but that doesn't make it less correct.
"In some ways, my autism makes me so smart that the rest of the world has trouble keeping up with my brain."
Again, in the theme of people seeing autism as a tragedy...
"Are people with autism allowed to be that happy?"
"No!"
"Maybe not, but autistic people are!"
Sensory issues can be a major barrier to communication.
"I'm sorry, but the soap you used today is hurting my nose and my eyes.
I can't hear anything you are saying."
Just because someone interacts differently, doesn't mean they need to be cured, doesn't mean that their life isn't worthwhile exactly as it is, doesn't mean they can't add value to your life.
"I don't talk. At all. But my life is worth living and I am worth getting to know."
The quiet moments are very valuable. Think outside the box a little. Why not choose a friend who doesn't talk?
"Conversation is okay. But friendship is better."
It's not all roses and rainbows.
"Sometimes it's cool to be different.
And sometimes it just makes me sad and tired."
People often equate silence with intellectual impairment.
"He doesn't talk. I wonder if there's anything happening in his head."
Artist: Landon Bryce
Images are sourced from:
thAutcast: Aspergers and Autism Community
Facebook: https://www.facebook.com/thautcast
Blogazine: http://www.thautcast.com/
What is Sensory Integration Dysfunction?
This is a tough question to answer with a short number of words, because it's a complex issue, but here goes an attempt to keep it brief:
We interact with the world via our seven senses - sight, smell, taste, hearing, touch, vestibular and proprioceptive awareness. (I will give more details about these in other articles).
This sensory input is vital for survival - it gives the information upon which we decide on fight or flight. It tells us if we're too cold or hot, when we're being loud, if someone has just touched us in a caring or savage way. A healthy sensory processing system does this effectively.
Someone with Sensory Integration Dysfunction can have a few challenging things happening instead.
- overload - too much sensory information going in for the brain to tolerate. Usually represented by a meltdown.
- mistranslation - light touch can be painful, broken bones might go unnoticed, talking loudly can be misunderstood as angry yelling and in some less common cases the senses get totally jumbled (e.g.: sounds might have colour!)
- difficulties filtering sensory info - someone with auditory sensitivities in a classroom will hear the cacophony of these things: the fan on the ceiling, the clock ticking on the wall, the teacher booming, Suzie whispering to Kate, paper rustling, pens and pencil scratching, the terrible sound of textas, the chattering from three classrooms down, the birds tweeting outside, and any number of other sounds. Blocking out the unnecessary noises comes naturally to the rest of us because our brain's filtering system works, but it's impossible for this person. So focusing on just one of the sounds as more important than the others (such as the teacher's voice) requires a huge conscious (exhausting) effort of concentration. (Imagine doing that all day at school - now imagine the same degree of bombardment of information through the other senses at the same time!)
- modulation problems - hyper- and hypo-sensitivities to sensory stimuli. Sometimes these will flip back and forth without notice, seriously affecting behaviour as the individual seeks or avoids various sensory input in an attempt to manually modulate.
- anxiety - it's almost impossible to avoid any anxiety when living with SID, and usually the more anxiety an individual has to manage, the more difficult it is to deal with SID (and vice versa). Teaching anxiety management techniques is imperative, as the two things necessarily interact.
We interact with the world via our seven senses - sight, smell, taste, hearing, touch, vestibular and proprioceptive awareness. (I will give more details about these in other articles).
This sensory input is vital for survival - it gives the information upon which we decide on fight or flight. It tells us if we're too cold or hot, when we're being loud, if someone has just touched us in a caring or savage way. A healthy sensory processing system does this effectively.
Someone with Sensory Integration Dysfunction can have a few challenging things happening instead.
- overload - too much sensory information going in for the brain to tolerate. Usually represented by a meltdown.
- mistranslation - light touch can be painful, broken bones might go unnoticed, talking loudly can be misunderstood as angry yelling and in some less common cases the senses get totally jumbled (e.g.: sounds might have colour!)
- difficulties filtering sensory info - someone with auditory sensitivities in a classroom will hear the cacophony of these things: the fan on the ceiling, the clock ticking on the wall, the teacher booming, Suzie whispering to Kate, paper rustling, pens and pencil scratching, the terrible sound of textas, the chattering from three classrooms down, the birds tweeting outside, and any number of other sounds. Blocking out the unnecessary noises comes naturally to the rest of us because our brain's filtering system works, but it's impossible for this person. So focusing on just one of the sounds as more important than the others (such as the teacher's voice) requires a huge conscious (exhausting) effort of concentration. (Imagine doing that all day at school - now imagine the same degree of bombardment of information through the other senses at the same time!)
- modulation problems - hyper- and hypo-sensitivities to sensory stimuli. Sometimes these will flip back and forth without notice, seriously affecting behaviour as the individual seeks or avoids various sensory input in an attempt to manually modulate.
- anxiety - it's almost impossible to avoid any anxiety when living with SID, and usually the more anxiety an individual has to manage, the more difficult it is to deal with SID (and vice versa). Teaching anxiety management techniques is imperative, as the two things necessarily interact.
Common reasons kids avoid getting started
There are lots of reasons why students (not just people with Autism/Asperger's) have trouble getting started. Below are a few clues.
Fear of failure - We all hate feeling like a failure. Young people/adults/children refuse to partake of activities often because they are afraid to be laughed at, or even simply afraid of finding out they aren't very good at something.
Fear of success - my son once told me that he didn't want to excel at school, because that would set up an expectation of success level from the adults at school - an expectation he didn't feel he could consistently work to. Sometimes people are also afraid of success because they don't have a concept of what that successful experience could look/feel like. The unknown terrifies them and thus holds them back.
It's all too much Type 1 - the student could be in overwhelm for any number of reasons. Try to learn what this looks like and be alert to when it might be happening. Work out a management strategy with your student, such as giving them a ten minute break from the noisy classroom so that they can re-group. Wherever possible, try to incorporate strategies like this as preventative steps rather than reactive solutions. This gives the child some control over their own behaviour management as well.
It's all too much Type 2 - sometimes the task is just too complicated or detailed for your student. Or there could be too many steps involved. Quite often students on the spectrum will have fine motor delay, which will mean they are slower to get work done. If the task seems too big or time-consuming, they will avoid it. In this case it's a good idea to cut the task down into smaller chunks (you teachers know that word "chunking"!), and give your Aspie student a reduced list of steps to achieve. How much you cut this down will depend on your student, but a good rule of thumb is to take the chunking you think is age appropriate and double the number of chunks (i.e.: create smaller bites to chew). You might even need to give them one small step at a time, as the awareness of the second step could be enough of a distraction to prevent commencement. NB: I have had a teacher say that they don't like this idea, as it felt like he was treating the student as someone much younger, and he didn't think that was okay. But please remember, it's never condescending to give your student what they need in order to learn. You're doing them a favour by adapting to their needs instead of forcing them into your worldview, and they don't know (or care) what level of chunking is age-appropriate, so it's really (honestly) a good thing for you to do it. Very small chunks could mean that your student finally experiences success. Isn't it exciting to think you could be the catalyst for that experience?
It's all too much Type 3 - Your student might have poor executive functioning (ability to plan and organise their work/thoughts/body). Around age 7, my son found this so difficult that when he was asked to sit and write something, he would sit with a piece of paper in front of him, behaving perfectly, but he would write nothing. As it turned out, the reason he had not begun was because it had not occurred to him to bring a pencil to the table, and he couldn't figure out what was missing when it came time to get started. This is a very intelligent child who simply could not work out what to do, because he couldn't think that many steps ahead. So you might find that with your student, you will have to do a lot of organising for them. Your objective is to build independence though, so try to give them systems to follow, rather than hand-holding through every step (although you will have to be diligent and patient as they build the neural pathways to be able to do this for themselves). A simple idea might be to have checklists stuck to their desk (such as 'What equipment do I need?'), so that they can work through a list of what to do next for fundamental tasks like preparing to write. But remember to be patient. It will take a long time and a lot of support for this skill to find its place.
Didn't catch all the instructions - a student with attention difficulties (this is also a common side effect of sensory overwhelm), might only hear part of the instructions. This student will frequently be unwilling to ask you to tell them again, because they have often found themselves being disciplined for not listening properly. Often instructions called out from the front of the classroom don't work for the student with Autism, because all that student hears is "yelling". After instructing your class, approach this student and (rather than repeating everything you just said), ask her to tell you in her own words what she needs to get done. This will give you some awareness of what she has understood, and an opportunity to clear up any miscommunications. It is also helpful to list instructions on the board as a ready reference, as your student might not be able to retain more than one step at a time.
Perfectionism - we see perfectionism in young children all the time, and it's a tough one to break, but it's vital that we do, because the anxiety related to this can completely prevent commencement and cause much bigger problems down the track. This is fear of failure at its worst. I recommend having a Mistakes Are Good Because We Learn From Them whole classroom culture. Also, many teachers make kids earn a pen licence (they must be able to write to a certain quality before they are allowed to use a pen for their classwork). I recommend doing the complete opposite, because kids can't erase pen mistakes, so they can get used to seeing that they aren't the only ones who have errors in their work. Another positive side-effect is that teachers can see what errors individual students are making, discover gaps in learning and plan future classes accordingly. Also, the child with fine-motor delay is rarely if ever going to meet the standard and thus earn the pen licence. Do you really want them to feel so bad by pointing out that they can never, ever measure up to their peers?
Sensory reasons - sometimes you will have a student on the spectrum who will refuse to start an activity or join in, but there doesn't appear to be any rational reason for this decision, and they aren't telling you what's wrong. Look for reasons such as those outlined above, but also be sure to ask a clear question such as, "Is there something specific about this activity which is preventing you from joining in?" My son has an irrational fear of styrofoam (related to the squeaky noise it makes). As articulate and verbal as he is, when faced with the prospect of an activity involving styrofoam, he will completely shut down and refuse to even enter the room, quickly losing the capacity to explain what is wrong, without adult intervention and assistance. If the issue is a fear like this, there is no reason worth forcing them to face the fear in front of their peers. Let it go, find another activity for this student, or change what you are doing in the classroom so as to include them.
And don't forget - it's imperative that we ask the direct questions, or we'll never really be sure we have the correct answers.
Please note: these are not ALL the possible reasons for someone having difficulty getting started, and any assumptions based on the following could turn out to be incorrect for the individual student you're dealing with. It is absolutely vital that we parents and teachers be respectful enough to ask them. You never know, that one simple question might save months or even years of angst.
Fear of failure - We all hate feeling like a failure. Young people/adults/children refuse to partake of activities often because they are afraid to be laughed at, or even simply afraid of finding out they aren't very good at something.
Fear of success - my son once told me that he didn't want to excel at school, because that would set up an expectation of success level from the adults at school - an expectation he didn't feel he could consistently work to. Sometimes people are also afraid of success because they don't have a concept of what that successful experience could look/feel like. The unknown terrifies them and thus holds them back.
It's all too much Type 1 - the student could be in overwhelm for any number of reasons. Try to learn what this looks like and be alert to when it might be happening. Work out a management strategy with your student, such as giving them a ten minute break from the noisy classroom so that they can re-group. Wherever possible, try to incorporate strategies like this as preventative steps rather than reactive solutions. This gives the child some control over their own behaviour management as well.
It's all too much Type 2 - sometimes the task is just too complicated or detailed for your student. Or there could be too many steps involved. Quite often students on the spectrum will have fine motor delay, which will mean they are slower to get work done. If the task seems too big or time-consuming, they will avoid it. In this case it's a good idea to cut the task down into smaller chunks (you teachers know that word "chunking"!), and give your Aspie student a reduced list of steps to achieve. How much you cut this down will depend on your student, but a good rule of thumb is to take the chunking you think is age appropriate and double the number of chunks (i.e.: create smaller bites to chew). You might even need to give them one small step at a time, as the awareness of the second step could be enough of a distraction to prevent commencement. NB: I have had a teacher say that they don't like this idea, as it felt like he was treating the student as someone much younger, and he didn't think that was okay. But please remember, it's never condescending to give your student what they need in order to learn. You're doing them a favour by adapting to their needs instead of forcing them into your worldview, and they don't know (or care) what level of chunking is age-appropriate, so it's really (honestly) a good thing for you to do it. Very small chunks could mean that your student finally experiences success. Isn't it exciting to think you could be the catalyst for that experience?
It's all too much Type 3 - Your student might have poor executive functioning (ability to plan and organise their work/thoughts/body). Around age 7, my son found this so difficult that when he was asked to sit and write something, he would sit with a piece of paper in front of him, behaving perfectly, but he would write nothing. As it turned out, the reason he had not begun was because it had not occurred to him to bring a pencil to the table, and he couldn't figure out what was missing when it came time to get started. This is a very intelligent child who simply could not work out what to do, because he couldn't think that many steps ahead. So you might find that with your student, you will have to do a lot of organising for them. Your objective is to build independence though, so try to give them systems to follow, rather than hand-holding through every step (although you will have to be diligent and patient as they build the neural pathways to be able to do this for themselves). A simple idea might be to have checklists stuck to their desk (such as 'What equipment do I need?'), so that they can work through a list of what to do next for fundamental tasks like preparing to write. But remember to be patient. It will take a long time and a lot of support for this skill to find its place.
Didn't catch all the instructions - a student with attention difficulties (this is also a common side effect of sensory overwhelm), might only hear part of the instructions. This student will frequently be unwilling to ask you to tell them again, because they have often found themselves being disciplined for not listening properly. Often instructions called out from the front of the classroom don't work for the student with Autism, because all that student hears is "yelling". After instructing your class, approach this student and (rather than repeating everything you just said), ask her to tell you in her own words what she needs to get done. This will give you some awareness of what she has understood, and an opportunity to clear up any miscommunications. It is also helpful to list instructions on the board as a ready reference, as your student might not be able to retain more than one step at a time.
Perfectionism - we see perfectionism in young children all the time, and it's a tough one to break, but it's vital that we do, because the anxiety related to this can completely prevent commencement and cause much bigger problems down the track. This is fear of failure at its worst. I recommend having a Mistakes Are Good Because We Learn From Them whole classroom culture. Also, many teachers make kids earn a pen licence (they must be able to write to a certain quality before they are allowed to use a pen for their classwork). I recommend doing the complete opposite, because kids can't erase pen mistakes, so they can get used to seeing that they aren't the only ones who have errors in their work. Another positive side-effect is that teachers can see what errors individual students are making, discover gaps in learning and plan future classes accordingly. Also, the child with fine-motor delay is rarely if ever going to meet the standard and thus earn the pen licence. Do you really want them to feel so bad by pointing out that they can never, ever measure up to their peers?
Sensory reasons - sometimes you will have a student on the spectrum who will refuse to start an activity or join in, but there doesn't appear to be any rational reason for this decision, and they aren't telling you what's wrong. Look for reasons such as those outlined above, but also be sure to ask a clear question such as, "Is there something specific about this activity which is preventing you from joining in?" My son has an irrational fear of styrofoam (related to the squeaky noise it makes). As articulate and verbal as he is, when faced with the prospect of an activity involving styrofoam, he will completely shut down and refuse to even enter the room, quickly losing the capacity to explain what is wrong, without adult intervention and assistance. If the issue is a fear like this, there is no reason worth forcing them to face the fear in front of their peers. Let it go, find another activity for this student, or change what you are doing in the classroom so as to include them.
And don't forget - it's imperative that we ask the direct questions, or we'll never really be sure we have the correct answers.
Subscribe to:
Posts (Atom)










